LEAP (Late Effects Assessment Programme)

What is LEAP?

LEAP stands for Late Effects Assessment Programme. It is a CDHB service providing long term follow up for survivors of childhood cancer. 

The New Zealand Cancer Control Strategy, Action Plan 2005-2010, identified the need to "ensure all survivors of childhood and adolescent cancer receive timely and ongoing support and rehabilitation, including the identification of, and intervention in, late effects" (Goal 4, objective 3, phase 1).

 It is estimated that around half of child cancer survivors will have at least one significant problem related to their treatment, for example problems with growth and development, learning and thinking skills, hearing loss, heart damage or fertility. 

In response to the Cancer Control Strategy, with initial funding from the Ministry of Health, LEAP commenced as a national programme in 2006, in the three cancer centres for New Zealand (Auckland, Wellington, and Christchurch).

What does LEAP provide?

  • Long term follow up clinics – multi-disciplinary clinics and nurse-led clinics across the South Island

  • Neuropsychological  assessments (including psychological adjustment, learning and thinking)

  • Psychosocial assessment and interventions (including therapy sessions, referrals to other agencies)

  • Adolescent transition  to primary health care 

  • Individual treatment summary, known as a "Health Passport" that provides risk based guidelines. A copy is given to the patient and General Practitioner

  • A national database that incorporates the New Zealand Children's Cancer Register (NZCCR) with LEAP data, and the ability to output health passports for patients and their health care providers

How do patients enter LEAP?

Clients already under the care of the paediatric oncologists are transferred into LEAP at the appropriate time – once treatment and disease surveillance is considered sufficient (from 2-5 years, dependant on the cancer).  LEAP also takes referrals from the adult oncology service and GP's for clients who have previously left paediatric care but now require late effects follow up. Clients can even refer themselves (or their child) by contacting the LEAP team directly.

Who is the LEAP team?

The core team comprises:

 

Paediatric Oncologists:                                                                

Dr Amanda Lyver

Dr Rob Corbett

Dr Siobhan Cross

Dr Tristan Pettit

Dr Andrew Dodgshun

 

Senior Clinical Psychologist:                                                      

Sarah Anticich

Rebecca Lee       

 

Clinical Nurse Specialist/LEAP Coordinator:                       

Jo Truscott

 

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Page last reviewed: 25 May 2016
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